Everyday is a miracle for Providence family, their baby was expe - ABC6 - Providence, RI and New Bedford, MA News, Weather

Everyday is a miracle for Providence family, their baby was expected to die

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By: Alexandra Cowley
acowley@abc6.com 
A providence couple was told by doctors their baby would only live minutes after birth. The baby was diagnosed with a rare disorder where a part of the brain and skull are missing. The baby is beating the medical odds, and on Tuesday, the family celebrates 37 days of life with their daughter.
For any parent, holding your baby in your arms for the first time is a miracle. That moment was magnified for Rony and Sonia Morales. Their daughter was diagnosed with Anencephaly when Sonia was just 16 weeks pregnant. They were told she'd die soon after birth.
Holding her baby girl Angela, Sonia said, "We just continued the pregnancy because we love her. We loved her since I knew I was pregnant."
Anencephaly is a rare birth defect. According to the Centers for Disease Control, 1 in about 4,800 babies are born with it in the U.S. every year. Baby Angela's neural tube didn't close all the way and was born without parts of her brain and skull.
"For us, there's nothing missing, it's like gods creation," said Sonia.
4-year-old Elizabeth can't get enough of her baby sister. The Morales' say everyday they get to hold her is a blessing.
"It's the greatest joy because it's like, another day for us is like another miracle," Sonia explained.
Their miracle has gained international support through a Facebook page Sonia created. Inspired by her story, strangers have sent baby clothes and knit hats.
She's hoping to encourage other parents not to give up, after such a grim diagnosis.
"Doesn't matter how short of time you get with the baby, at least you get to hold the baby in your arms, and the baby will not only love, pure love," Sonia smiled.
The Morales' have also set up a gofundme page to raise money for Angela's surgery on May 6th.
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